Not good news, not sure what kind of news!

Yesterday Caitlin had an MRI and an audiogram at Primary Children's, which was interesting (ha ha ha) Unfortunately many things went wrong, first I had the time wrong so we had to wait for a whole hour in the waiting room, and they had messed up the scheduling. Caitlin was suppose to be under sedation for both the MRI and the audiogram but they can only give her the medicine once. Anyway since the MRI took so long, and then it took a little while for the audiologist to come, that Caitlin was awake before they were halfway done. From what they did get, they say that her hearing is still good, meaning that the chemotherapy hasn't affected her hearing. After that we went to see Dr. Lemons to talk about the results from the MRI. Where the tumor was before shows no new or re-growth, so that was good news. But they did find plaque-like lesions on her spine at the base of her neck, which right now we are unsure of what that really is. So on Friday we are heading back down to Primary's to get a lumbar puncture done to see if that gives us a clue to what the growth is. Jake and I were kind of heart broken, we had hoped that we were at the end of this awful journey and that we were just going to have to finish up the maintenance chemo. Now we might just have to go back and do some of it all over again. Before yesterday I felt like a broken vase pieced back together with just one more piece to put back in to complete it. Now I feel like that piece instead of fitting in perfectly caused the whole thing to break apart again. I am okay, I am just feeling a little defeated right now.

Still not much happening!

I feel like I would be boring people to death if I wrote something everyday, since there really isn't very much going on in our lives right now. Caitlin has been doing really good, and is enjoy the break from chemotherapy. Since her counts are good, we even went to Gymnastics class last Friday, a class set up by the Up to 3 program to help kids learn how to walk. Caitlin liked it, I think. Mom was exhausted by the end of it. She seems to be doing pretty well, she wants to walk everywhere but she still needs you to hold her hands. Allie is doing really well in school, and has been learning to read. She only has 7 days left. We decided since soon Caitlin will be starting chemotherapy again and her counts will probably go down again, we purchased a little slide and waterwheel play table for our back yard. Then she can at least play outside, since we wont be able to go the park soon. On another note, since Caitlin is not home bound we went to our new ward yesterday. They were so nice and most of them already knew who we were. Anyway I guess that's all for now.

Not Much Going on

Well sorry it has been so long since I have updated, but unfortunately and thankfully not much is going on right now. Unfortunately because I am usually pretty bored. Thankfully because Caitlin is doing so well, that we have a nice break from Primary Children's. She has another hearing test and MRI scan on the 26Th of this month, and then maintenance chemotherapy after that, if the scans look good. I don't know if being a stay at home Mom is a right fit for me, I love my girls but sometimes they are also a bit much and I think I have watched enough Hannah Montana and Suite life of Zack and Cody to last me a lifetime. I also miss my friends from work. Maybe if I had a bun in the oven, then at least I would feel more productive. No that is not a confession, more wishful thinking! I just feel like after cleaning the house, and taking care of the girls, I have nothing to do. I know I need to find a hobby. I just feel bad when Jake leaves for work everyday, I wish I could help take some of the financial load off his shoulders. I am so proud of him, instead of coming home when he is offered no works, he stays and works hard to earn money for our family, which we definitely need. Also I am pretty sure Jake would freak out if we would have another girl, (he is the only boy in his family) truthfully I don't know if I could handle another drama queen either. Another reason I am still being a stay at home Mom, is that we were approved for Medicaid which is a blessing come true, unless you have been through this, you have no idea how expensive going through chemotherapy and radiation is. Our insurance is pretty good, but it does not cover everything. Anyway I am not quite sure if any of this makes sense. I have kind of had a lot on my mind lately, just trying to decide what our plans are for the future.